Category: Uncategorized
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World Down Syndrome Day
3-21 Every year on 3-21 I think about Oliver and how he has changed our lives. March 21st is World Down Syndrome Day. Typical individuals have two copies on the 21st chromosome. Individuals with Down syndrome have three partial or full chromosomes on the 21st chromosome. I won’t lie! I do get frustrated and I…
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Finding Beauty From Pain
Today, I closed myself in the bathroom and I put my face in a towel and I cried! I cried that gut wrenching, body-shaking, painful, ugly cry! I cried for the all the pain Oliver has endured in has last three years of life. I cried for all the lost hours of sleep I have…
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The Grief Turned to Joy
Lately, I have been finding myself on the verge of tears. This only happens when I am alone and when it is quiet. Alone and quiet doesn’t happen very often in my world. There is always something going on around me: homework, volleyball, lacrosse, church, work, construction (my husband is a contractor and loves to…
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Big Things Happening Here- The Rest of my Story
I never thought I would say that I have become involved with the political world. Last month, I was asked if I would share my story in support of senate bill 164. This bill would ban abortions from being performed because of a Down syndrome diagnosis. The woman would not be charged, but the physician…
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About Me
The majority of this blog is about Oliver and the obstacles he has overcome. There has been mention of my other two kiddos and a smidgen about me. For you to be able better understand our story, I thought I would share a little about myself. I am a 35 year old with three children:…
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It Has Been Awhile
No news is good news! Oliver is doing awesome! I can’t believe my last post was in October! I have fallen behind in life! I will try to sum up the last few months. Oliver had another surgery in November. He had a tear duct probe placed in his right eye (which once again…
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2016 Epic Family Vacation
This year we took an epic trip to Florida! ! To go to Disney! Taking Oliver on vacation with us was one of the best gifts ever! A year and a half ago we were fighting to keep this little man alive. I wasn’t able to make any plans for the future. I lived day…
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Oliver's 1 Year Heartaversary
On August 17, 2015, I walked my baby down a cold, bright, white hall. We came to large double doors. It was at those doors where I handed my precious baby boy over to a nurse. As I cried, she looked into my eyes (with Oliver in her arms) and she told me that she…
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Overwhelmed
The past few weeks have been more than I can handle! It seems that when it rains, it pours. I know that I shouldn’t complain because Oliver is alive and he is well and he is happy! But, my heart is heavy from all the stress. On July 6th, Oliver had surgery to create a…
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Update on Oliver
Oliver is such a sweet and loving child! I am constantly amazed by his tender heart. Did I tell you he flirts with all the ladies? Even better, he loves the older ladies (and I mean OLDER ladies)! Oliver gives them his googly eyes! I can’t help but smile while he wins the hearts of…
Adventures of the Kuhns 